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Starbright Foundation - http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm
Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms. |
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Bandaides and Blackboards - http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories. |
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Children and Grief - http://www.aacap.org/publications/factsfam/grief.htm
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families). |
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Dealing With a Health Condition - http://kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html
Explains teenagers how to cope, to take control, deal with others. |
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The Child With a Long-Term Illness - http://www.aacap.org/publications/factsfam/illness.htm
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse. |
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Youth in Transition - http://www3.bc.sympatico.ca/steeksma/Medical/transition.htm
Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management. |
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Shared Vision - http://pediatrics.aappublications.org/cgi/content/full/105/1/S2/277
Complete article (also as PDF) on longterm needs, financial and medical planning. |
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Parental Advice on Coping with Chronic Illness of your Child - http://www.parenting-ed.org/handout3/Specific Concerns and Problems/coping with chronic illness.htm
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers. |
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What is a Chronic Illness? - http://endoflifecare.tripod.com/kidsyoungadults/id23.html
Explains to children what their ill friend or relative experiences and what they can do themselves. |
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Teenagers and Coping with Chronic Illness - http://www.irishhealth.com/?level=4&id=455#top
Tips and strategies for parents with newly diagnosed teenagers. |