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National Foundation for Ectodermal Dysplasia - http://www.nfed.org/
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. |
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Ectodermal Dysplasia Society - http://www.ectodermaldysplasia.org/
Information about the organization as well as the ED condition. Includes links, news articles and contact details. |
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The Andy Fund - http://www.andy.org.mx
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. |
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The CaF Directory - http://www.cafamily.org.uk/Direct/e14.html
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing. |
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NORD: Ectodermal Dysplasias - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias
Offers synonyms, a general discussion and resources. |