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Fragile X Syndrome
  Health > Conditions and Diseases > Genetic Disorders > Fragile X Syndrome   Go to Directory Home: [English]  [English]  

Related Categories:
    Health > Conditions and Diseases > Neurological Disorders > Chromosomal  (19)
    Health > Mental Health > Disorders > Child and Adolescent > Mental Retardation > Causes  (17)

Web Pages
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  FRAXA Research Foundation Home Page http://www.fraxa.org/
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
  The National Fragile X Foundation http://www.fragilex.org/
Features information about the disease, its treatment, and inheritance.
  Fragile X Research Foundation of Canada http://www.fragile-x.ca/
Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
  Fragile X Association of Australia http://www.fragilex.org.au/
Information on this disease, medical aspects, education, references, contacts and what's new in Australia
  Carolina Fragile X Project http://www.fpg.unc.edu/~fx/
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
  Conquer Fragile X, Inc. http://www.conquerfragilex.org
Creating a virtual research center in Israel to find a cure.
  Fragile X Association of Southern California http://www.fraxsocal.org
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
  Fragile X Syndrome - Diagnostic and Carrier Testing http://www.faseb.org/genetics/acmg/pol-16.htm
A Policy Statement from the American College of Medical Genetics.
  Maryland Fragile X Resource Group http://www.mdfragilex.org/
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
  Living with Fragile X http://fragilex.ca
One family's account of raising 3 children with Fragile X.
  Pediatric Oncal http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp
Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
  Online Support Group http://groups.yahoo.com/group/fragilex/
Support group for Family's who are dealing with Fragile X Syndrome.

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