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Proteus Syndrome Foundation - http://www.proteus-syndrome.org/
Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters. |
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The CaF Directory - http://www.cafamily.org.uk/Direct/p50.html
A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group. |
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NORD: Proteus Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Proteus%20Syndrome
Offers synonyms, a general discussion and further resources. |
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Woman's 11-stone legs may be lost - http://news.bbc.co.uk/2/hi/uk_news/england/lancashire/6621331.stm
The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs. |
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Pediatric Oncall - http://www.pediatriconcall.com/fordoctor/casereports/Proteus_syndrome.asp
Find a proteus syndrome case report, including CXR and radiographs. |