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Ben's Dream - http://www.bensdream.org
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter. |
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MPS III - http://www.mpssociety.org/content/4039/MPS_III/
Information, including the causes, different forms, the inheritance and how the disorder progresses. |
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Children's Medical Research Foundation - http://www.curekirby.org/
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation. |
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Special Child: Disorder Zone Archives - Sanfilippo Syndrome - http://www.specialchild.com/archives/dz-034.html
Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect. |
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Bennett Children's Foundation - http://www.claritystudio.com/helpachild/
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support. |