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The Sturge-Weber Foundation - http://www.sturge-weber.com/
A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research. |
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Sturge-Weber Syndrome Community - http://swscommunity.org/
Organization for individuals and families affected by SWS. |
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Sturge-Weber Syndrome Center - http://www.neuro.jhmi.edu/HopkinsSWSCenter/index.htm
Clinical center dedicated to the treatment and study of SWS at Johns Hopkins Hospital in Baltimore. Find disease information, diagnosing, and treatment as well as details about the facility. |
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NORD: Sturge Weber Syndrome - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sturge%20Weber%20Syndrome
Offers a list of synonyms, a general discussion and further resources. |