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Craniosynostosis
  Health > Conditions and Diseases > Musculoskeletal Disorders > Congenital Anomalies > Craniosynostosis   Go to Directory Home: [English]  [English]  

Categories
Support Groups (2)
Web Pages
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  Craniosynostosis http://www.ninds.nih.gov/disorders/craniosynostosis/craniosynostosis.htm
Information sheet compiled by National Institute of Neurological Disorders and Stroke.
  FACES: The National Craniofacial Association http://www.faces-cranio.org
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders.
  Plagiocephaly Information Web http://www.plagiocephaly.info
Information on the diagnosis and correction of abnormal head shape.
  Craniosynostosis http://www.emedicine.com/neuro/topic80.htm
Article from eMedicine.
  World Craniofacial Foundation http://www.worldcf.org
Provides assistance for those in need of treatment.
  Asher's Craniosynostosis Home Page http://www.geocities.com/HotSprings/Villa/3462/index.html
Describes a family's experience with CS. Includes information and links about the condition and its treatment.
  Sagittal Synostosis Homepage http://www.geocities.com/HotSprings/6751/
Information (including details of genetic research) and support for people affected by this condition.
  Craniosynostosis http://www.kidsplastsurg.com/skull.cfm#craniosynostosis
Definition, description, diagnosis, treatment and support. Includes photos of patients and illustrations of the cranial sutures involved in this condition.
  Craniosynostosis, Endoscopic Strip Craniectomy http://www.craniosynostosis.net/
Information on surgical procedures.
  Craniosynostosis http://www.aafp.org/afp/20040615/2863.html
Article from the American Family Physician.
  Craniosynostosis http://www.chw.org/display/router.asp?DocID=22502
Causes, pictures, and long term consequences.
  Devin's Craniosynostosis http://www.geocities.com/mikayla_cutiepatootie/Devin3_cranio.html
Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada.
  Michal's Story http://www.geocities.com/michalglanz/
English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel.
  Alexander Foundation http://www.thealexanderfoundation.com/
Non-profit charitable institution that supports the funding and research of Kleeblattschadel Deformity, or cloverleaf syndrome, a type of craniosynostosis in which there is premature closure of bones of the skull.
  Cranio Online http://www.cranio-online.de/index_engl.html
For parents of children born with cranial deformities. Includes support group and FAQ. [English and German]
  Brynne and Craniosynostosis http://members.aol.com/cdbosworth/brynnespage.html
Personal experiences of a family and a child born with craniosynstosis.

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