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Intracranial Hypertension Research Foundation - http://www.ihrfoundation.org
Nonprofit organization supporting research and the causes and treatment of IH (pseudotumor cerebri). Information about the condition, patient registry, research news, and links to related sites. |
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Dutch PTC Support Group - http://www.pseudotumorcerebri.nl/
Viewable in both Dutch and English, this site is maintained by the Dutch PTC Support Group. Subscribe to the monthly newsletter, read personal PTC stories and an informal survey conducted by the managers of this group of the members; along with the survey results. |
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IIH UK - http://www.iih.org.uk/
Organization aims to campaign for research and to promote education about idiopathic intracranial hypertensio. Includes a number of information leaflets about IIH, its symptoms, and related subjects. |
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Pseudotumor Cerebri Informational Homepage - http://www.geocities.com/Wellesley/Garden/1297/pseudotumorcerebri.index.html
The Pseudotumor Cerebri Informational Homepage offers an explanation of Pseudotumor Cerebri with suggestions on improving headache pain, along with possible diet modifications. Links for PTC support are also included. |
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Pseudotumor Cerebri Community - http://groups.msn.com/pseudotumorcerebri
Provides support for patients, friends and families. Includes information on symptoms, diagnosis, and treatment, as well as message boards and an open chat room. |
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IIH Support - http://www.iihsupport.org/
A forum offering support, advice and help for people with idiopathic intracranial hypertension, also known as BIH (Benign Intracranial Hypertension), and PTC (pseudotumor cerebri). |
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care2 BIH group - http://www.care2.com/c2c/group/BIH
A support and educational group for those diagnosed with B.I.H, their families and friends; also for compassionate souls who wish to learn more and help others. |
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Yahoo! Groups : PTC - http://groups.yahoo.com/group/ptc/
This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. |
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Benign Intracranial Hypertension - http://www.mjmoore.co.uk/bih/
A UK based site relaying a personal experience, with symptoms, possible causes, and diagnosis. Message boards are included to connect with others living with BIH. |
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Team IIH - http://groups.msn.com/teamIIHplus
Information on Idiopathic Intracranial Hypertension (IIH, also known as Pseudotumor Cerebri), that includes pages written in Swedish, English, Italian, and German. |