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Leukodystrophy - http://www.ninds.nih.gov/disorders/leukodystrophy/leukodystrophy.htm
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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Alexander Disease - http://www.ninds.nih.gov/disorders/alexander_disease/alexander_disease.htm
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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United Leukodystrophy Foundation - http://www.ulf.org/
Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health. |
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Joe Johnson and the Call Again Soon BBS - http://www.joejohnson.net/
Directed at making life better for people affected by Leukodystrophy and those who know and love them. |
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Family Village / Library / Leukodystrophy - http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease. |
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MCW HealthLink - Alexander Disease - http://healthlink.mcw.edu/article/921383447.html
Information sheet from the Medical College of Wisconsin. |
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Aicardi-Goutieres Syndrome - http://www.aicardi-goutieres.com
News, descriptions, contacts, and other information concerning this leukodystrophy. |
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Devoted to Brianna - http://hometown.aol.com/ydb739094/brianna.html
Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many. |
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Undiagnosed Leukodystrophy - http://members.tripod.com/phillipslauren/
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic. |
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Dylan Samuel Freeman - http://www.dylanfreeman.20m.com
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs. |