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Huntington's Disease
  Health > Conditions and Diseases > Neurological Disorders > Huntington's Disease   Go to Directory Home: [English]  [English]  

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Support Groups (2)
Related Categories:
    Health > Conditions and Diseases > Genetic Disorders  (925)
    Health > Conditions and Diseases > Neurological Disorders > Brain Diseases > Basal Ganglia  (22)
    Health > Conditions and Diseases > Rare Disorders  (275)

Web Pages
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  Huntington's Disease Society of America http://www.hdsa.org
Research, assistance, and education.
  Huntington's Disease http://www.ninds.nih.gov/disorders/huntington/huntington.htm
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  Huntington's Disease Association UK http://www.hda.org.uk
Supports people affected by the disease and provides information and advice to professionals.
  Huntington's Disease Advocacy Center http://www.hdac.org
Information, questions and answers, problem-sharing, personal experiences and articles on Huntington's disease.
  International Huntington Association http://www.huntington-assoc.com/
Federation of national voluntary health agencies.
  The Huntington's Disease Lighthouse http://hdlighthouse.org/
Current information on treatments, drugs, support and patient resources.
  Huntington's Disease For Families http://huntingtondisease.tripod.com/
Information for all families living with this disease including people with HD, caregivers, those at risk and young people.
  Heather's Huntington's Disease Page http://heatherdugdale.angelfire.com/
Features a weblog, care giving tips, ways to fight brain fog, myths, the author's story, families’ story, poetry, and ways to have a positive testing experience.
  Caring for People with Huntington's Disease http://www.kumc.edu/hospital/huntingtons/
Information about caring for people with Huntington's disease, for patients, families and professionals.
  eMedicine Health - Huntington Disease Dementia http://www.emedicinehealth.com/articles/39041-1.asp
Consumer health resource center providing information on the causes, symptoms, and treatment.
  Nutrition for People with Huntington's Disease http://www.lib.uchicago.edu/~rd13/hd/nutritn.html
Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease.
  Australian Huntington's Disease Association (Qld) Inc. http://www.qahda.com/
Gives disease information, services available in Queensland Australia and links.
  Huntington's Disease Blog http://www.huntingtons.info
Weblog with the latest information on research and news.
  Australian Huntington's Disease Association Inc. http://www.ahdansw.asn.au/
Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.
  Huntington's Disease Information http://www.lib.uchicago.edu/~rd13/hd
A resource on Huntington's disease.
  Huntington's Disease Program UCHC http://psychiatry.uchc.edu/huntingtons/
Services of the Huntington's disease program of the University of Connecticut Health Center.
  Australian Huntington Disease Association (Vic) http://www.ahda.com.au
Information about Huntington Disease and HD support services available in Victoria.
  Huntington Disease Medical Clinic http://www.cmmt.ubc.ca/clinical/
The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada.
  Huntington Disease Clinical Research http://www.cmmt.ubc.ca/research/clinical/HD_Clinical_Research/
The clinic provides care from several perspectives for individual(s) with HD as well as their families.
  Tony's Family Site http://www.bridger.freeuk.com
A personal website detailing how Huntington's disease has affected Tony's family and friends.
  Generation's of Hope http://generationsofhope.tripod.com/
Building a camp and advocacy programs for children and families of Huntington's disease.
  CureHD Foundation http://www.curehd.org
A charity site aiming to spread awareness, information, and news about Huntington's disease.
  John and Jean's Story http://members.aol.com/jgriff2296/
A personal website with the story of a family affected by Huntington's disease (UK).
  Huntington's Disease Overview http://neurologicalillness.suite101.com/article.cfm/huntingtons_disease_overview
Provides articles, blogs, and discussions on HD. Topics include communication, safe housing, and behavioral issues.
  Juvenile HD http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/
Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance.

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