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DMD Support List - http://health.groups.yahoo.com/group/dmdsupport/
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy. |
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Duchenne Muscular Dystrophy Support eGroup - http://health.groups.yahoo.com/group/Duchenne_Muscular_Dystrophy/
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy. |
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The Muscular Dystrophy Forum - http://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/
An online support group for people affected by any neuromuscular condition. |
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PROMM (Proximal Myotonic Myopathy) - http://health.groups.yahoo.com/group/PROMM/
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation. |
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Dysferlin - http://health.groups.yahoo.com/group/dysferlin/
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B. |
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Muscle Disease - http://health.groups.yahoo.com/group/muscledisease/
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases. |
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MD-List - http://health.groups.yahoo.com/group/md-list/
Mailing list to provide support for people affected by all different forms of Muscular Dystrophy. |
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Christians With Duchenne Muscular Dystrophy - http://health.groups.yahoo.com/group/ChristiansWithDuchenneMuscularDystrophy/
Mailing list for Christians who have Duchenne Muscular Dystrophy. |
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FSH Friends Forum - http://health.groups.yahoo.com/group/FSH_Friends/
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy. |
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FSH Muscular Dystrophy - http://health.groups.yahoo.com/group/FSHmusculardystrophy/
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends. |