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Tuberous Sclerosis
  Health > Conditions and Diseases > Neurological Disorders > Neurodegenerative Diseases > Tuberous Sclerosis   Go to Directory Home: [English]  [English]  

Related Categories:
    Health > Conditions and Diseases > Genetic Disorders  (925)
    Health > Conditions and Diseases > Rare Disorders  (275)
    Health > Mental Health > Disorders > Child and Adolescent > Mental Retardation > Causes  (17)

Web Pages
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  Tuberous Sclerosis http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  Tuberous Sclerosis Alliance http://www.tsalliance.org/
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
  MedlinePlus: Tuberous Sclerosis http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html
A list of synonyms, a summary and major features.
  Tuberous Sclerosis Fact Sheet http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
  Tuberous Sclerosis Association http://www.tuberous-sclerosis.org/
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
  Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program http://www.cincinnatichildrens.org/Programs_Services/229/index.asp
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
  NORD: Tuberous Sclerosis http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis
Offers alternative names, a general discussion and further resources.
  Tuberous Sclerosis - Lisa's Site http://www.title14.com/ts/
An incurable genetic condition that causes tumors to grow in various places in the body.
  Team Tamara http://www.team-tamara.org
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes information links and Tamara's health updates.
  Pediatric Oncall- Tuberous Sclerosis http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp
Offers commonly asked questions about this disease.
  Kolten's Tuberous Sclerosis Page http://www.kolten.homestead.com/Kolten.html
Describes his seizures and surgery.
  Matthew's Site for Tuberous Sclerosis Awareness http://www.angelfire.com/la3/tsc/
Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.

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