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International Rett Syndrome Association (IREA) - http://www.rettsyndrome.org/
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome. |
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NINDS Rett Syndrome Information Page - http://www.ninds.nih.gov/disorders/rett/rett.htm
Information in Rett Syndrome, treatment and prognosis. |
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Rett Syndrome Fact Sheet - http://www.ninds.nih.gov/disorders/rett/detail_rett.htm
An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS). |
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Rett Syndrome Association UK - http://www.rettsyndrome.org.uk/
National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar. |
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Rett Syndrome - http://www.autism.org/rett.html
The Autism Research Institute distributes an information packet on Rett Syndrome. |
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Rett Angels - http://www.rettangels.org
Rett Syndrome forum and online support group sharing personal stories and information. |
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Rett Language - http://www.geocities.com/pflowerett/
One family's experience with Rett Syndrome, Applied Behavioral Analysis and Discrete Trial Teaching. |
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The Sarah Varon Foundation for Rett Research - http://www.sarahvaronfoundation.org/
A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease. |
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Rett Syndrome Research Foundation - http://www.rsrf.org
Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered. |