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Facial Differences

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Apert Syndrome (8) Cleft Lip and Palate (26) Craniosynostosis (2)

Langer-Giedion Syndrome (1) Parry-Rombergs Syndrome (4) Smith-Magenis Syndrome (3)

Stickler's Syndrome (3) Treacher Collins Syndrome (4)

Web Pages

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	FACES: The National Craniofacial Association - http://www.faces-cranio.org Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
	Children's Craniofacial Association - http://www.ccakids.com Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
	Let's Face It USA - http://www.faceit.org/ A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
	AboutFace - http://www.aboutfaceinternational.org/ International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
	Sincere Meditations - http://www.davidroche.com/lamott.htm Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.

	Johns Hopkins Center for Craniofacial Development and Disorders - http://www.hopkinsmedicine.org/craniofacial/ Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
	Foundation for Faces of Children - http://www.facesofchildren.org Expert information for families and health care professionals about craniofacial conditions.
	The DRM WebWatcher: Facial Differences - http://www.disabilityresources.org/FACE.html A Disability Resources monthly guide to online resources about craniofacial differences.
	XP Support Group - http://xpsupportgroup.org.uk UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
	Beneath the Surface - http://beneaththesurfaceweb.com Offers support and understanding to individuals of facial difference.

	Support Works Online - http://www.supportworks.org/cat806.htm Resources to find or form support groups related to facial difference. Information on medical research.
	The Craniofacial Society of Great Britain and Ireland - http://www.craniofacialsociety.org.uk/ Information about the society, which is a multidisciplinary forum for specialists.
	The Personal Side of Craniofacial Differences - http://members.tripod.com/~Craniofacial/index.html Personal accounts of living with craniofacial conditions, and related webrings.

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