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Cleft Lip and Palate
  Health > Support Groups > Conditions and Diseases > Facial Differences > Cleft Lip and Palate   Go to Directory Home: [English]  [English]  

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Popliteal Pterygium Syndrome (1)
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    Health > Medicine > Surgery  (2770)

Web Pages
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  American Cleft Palate/Craniofacial Association (ACPA)/Cleft Palate Foundation http://www.cleftline.org
Information and support from this newly combined organization.
  The Smile Train http://www.smiletrain.org
An international charity that provides surgery to those in need, as well as providing training to doctors in the region. Includes news, photograph gallery, and project details.
  Wide Smiles http://www.widesmiles.org
Cleft Lip and Cleft Palate Resource. Includes mailing list, webring, photo gallery and a huge collection of resource articles.
  Cleft Advocate http://www.cleftadvocate.org
Provides education, inspiration, support and understanding for parents and families. Also offers insurance and advocacy information.
  Cleft Lip & Palate Association http://www.clapa.com/
Information on services and advice offered by this UK association.
  Smiles http://www.cleft.org
Cleft lip and palate support group providing help on craniofacial issues and an overview of cleft palae management
  Operation Rainbow http://www.operationrainbowcanada.com/
Registered Canadian charity oversees volunteer medical teams providing free reconstructive surgery to children in under-served countries with cleft lip, palate, and burn scars
  Prescription Parents http://www.samizdat.com/pp1.html
Articles and links for parents of children born with cleft lip/cleft palate.
  Cleft Lip and Palate Association of Ireland http://www.cleft.ie
An Irish voluntary group providing support and information for parents of children with cleft lip and palate and those directly affected.
  Cleft Lip and Cleft Palate http://www.kidshealth.org/kid/health_problems/birth_defect/cleft_lip_palate.html
Explains their causes, treatment, and effect on a child's life.
  Maryland Society for Cleft Lip and Palate Children http://www.msclpc.org
For children with cleft lip/cleft palate and their families and friends.
  Cleft Notes http://www.geocities.com/cleftnotes/
Site dedicated to families with cleft born children. Pictures of bilateral cleft and submucous palate repair progression along with medical and personal information.
  Transforming Faces Worldwide http://www.transformingfaces.org/
A charity supporting cleft lip and palate management around the world.
  Final Operations (Cleft Lip/Palate) -- John B. Mulliken http://www.samizdat.com/pp7.html
John B. Mulliken, M.D. discusses final operations related to teeth, lip scars and nose, for teenagers with cleft lip/palate.
  Speech and Cleft Lip/Cleft Palate http://www.pediatriconcall.com/forpatients/SpeechandHearing/speech_cleft_lippat.asp
Find out more about the speech therapy for a child with cleft lip and/or cleft palate.
  Common Congenital Disorders-Cleft Lip http://www.ppsca.com/cleft.htm
From the Pediatric Plastic Surgery and Craniofacial Associates site, this provides basic cleft lip and palate information, along with before and after pictures.
  Velopharyngeal Insufficiency http://www.emedicine.com/ent/topic596.htm
This article addresses the indications and remedies for velopharyngeal insufficiency in cleft-affected patients.
  Cleft Lip and Palate http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/cleft_lip.html
Concise factsheet on causes, symptoms and treatment of cleft lip and palate.
  CleftPALS QLD INC. http://www.powerup.com.au/~cleftpal/
Australian support group that provides information and help for families with a cleft child.
  Cleft Lip and Palate http://www.drgreene.com/21_1046.html
Read about this birth defect, learn why it happens, and find out how it can be prevented.
  Charleston Clefts, Inc. http://www.charlestonclefts.org
Features personal accounts from individuals, parents, and practitioners.
  Living With Cleft Lip and Palate http://members.tripod.com/deeanddall2/
One woman's journey to adulthood with cleft lip and palate. Contains support and information links as well as a forum for discussion with others who are faced with clefts.
  clefthelp.com http://clefthelp.com/
Information and inspiration for children with cleft palates, cleft lips and other facial defects.
  Emily's Story http://www.ouremily.blogspot.com
Emily was born with cleft lip and palate on April 15, 2004. This site chronicles Emily's treatment, recovery and day to day progress with specifics on using nasoalveolar molding (NAM) device prior to surgery.
  Cleft Lip and Palate http://ped1.med.uth.tmc.edu/genetics/research/index_CLP.htm
Explains the research conducted at the Division of Medical Genetics at the University of Texas. Affected families are invited to participate in the study.
  Born to be Cleft http://calvero.tripod.com/cleft/
Personal story of what it was like having been born with this disorder.
  Left Clip Club for Older Children and Teenagers http://groups.yahoo.com/group/leftclip
A place for older children and teenagers affected by cleft lip and/or cleft palate to communicate and share ideas. Organised by the Cleft Lip and Palate Association (UK).
  Cleft-Chat and Smile http://health.groups.yahoo.com/group/cleftchat/
An on-line support group for parents of children born with cleft lip and/or cleft palate.

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