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Fanconi
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Blood Disorders
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Anemia
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Alex and Matt Pearl
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http://www.alexandmatt.com
Personal stories of two children fighting Fanconi Anemia.
Blackfan
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http://health.groups.yahoo.com/group/blackfan/
Yahoo list group for Diamond Black Fan Anemia sufferers.
Family Village: Fanconi Anemia
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http://www.familyvillage.wisc.edu/lib_fanc.htm
Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
Fanconi Anaemia
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http://www.cancerindex.org/ccw/fanconi.htm
A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
Fanconi anaemia in the Swedish Rare Disease Database
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http://www.socialstyrelsen.se/en/rarediseases/Fanconi%2banaemia.htm
Information text in English about Fanconi anaemia from the Rare Disease Database of the Swedish National Board of Health and Welfare
Fanconi Anemia
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http://www.members.cox.net/amgough/Fanconi.shtml
Discusses the genetics of this condition and treatment options.
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
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http://www.mazornet.com/genetics/fanconi_anemia.htm
Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
Fanconi Anemia Research Fund
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http://www.fanconi.org/
To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Anemia Web
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http://members.tripod.com/fanconianemiaweb/
An informational site for this disorder.
Fanconi Canada
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http://www.fanconicanada.org
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
Fanconi Syndrome
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http://www.worthyfs.com
Read how Markita Worthy celebrated her 31st birthday, having Fanconi's syndrome for 29 of those years. Also offers information about this rare disorder and links to further resources.
http://health.groups.yahoo.com/group/fanconi/
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http://health.groups.yahoo.com/group/fanconi/
Yahoo list group for sufferers of this condition.
Kaps for Kendall
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http://www.kapsforkendall.com
In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
KATA Foundation
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http://www.katafoundation.org
The Kendall and Taylor Atkinson Foundation (KATA) raises funds to support scientific and medical research of effective treatments and a cure for Fanconi anemia
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