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Fanconi
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Alex and Matt Pearl http://www.alexandmatt.com
Personal stories of two children fighting Fanconi Anemia.
Blackfan http://health.groups.yahoo.com/group/blackfan/
Yahoo list group for Diamond Black Fan Anemia sufferers.
Family Village: Fanconi Anemia http://www.familyvillage.wisc.edu/lib_fanc.htm
Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
Fanconi Anaemia http://www.cancerindex.org/ccw/fanconi.htm
A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
Fanconi anaemia in the Swedish Rare Disease Database http://www.socialstyrelsen.se/en/rarediseases/Fanconi%2banaemia.htm
Information text in English about Fanconi anaemia from the Rare Disease Database of the Swedish National Board of Health and Welfare
Fanconi Anemia http://www.members.cox.net/amgough/Fanconi.shtml
Discusses the genetics of this condition and treatment options.
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases http://www.mazornet.com/genetics/fanconi_anemia.htm
Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
Fanconi Anemia Research Fund http://www.fanconi.org/
To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Anemia Web http://members.tripod.com/fanconianemiaweb/
An informational site for this disorder.
Fanconi Canada http://www.fanconicanada.org
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
Fanconi Syndrome http://www.worthyfs.com
Read how Markita Worthy celebrated her 31st birthday, having Fanconi's syndrome for 29 of those years. Also offers information about this rare disorder and links to further resources.
http://health.groups.yahoo.com/group/fanconi/ http://health.groups.yahoo.com/group/fanconi/
Yahoo list group for sufferers of this condition.
Kaps for Kendall http://www.kapsforkendall.com
In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
KATA Foundation http://www.katafoundation.org
The Kendall and Taylor Atkinson Foundation (KATA) raises funds to support scientific and medical research of effective treatments and a cure for Fanconi anemia

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