Barth Syndrome Foundation - http://www.barthsyndrome.org
Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. |
NINDS - Barth Syndrome Information - http://www.ninds.nih.gov/disorders/barth/barth.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |
The Complete Barth Syndrome Homepage - http://www.csun.edu/~hcbio033/barth.html
List of clinical symptoms, history of the condition, current news, and links to support groups. |